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Friday, June 08, 2007

The American health system is focused on curing, and spends billions of dollars on treatment at the end of life. But now more than 40 million adult Americans suffer with life-altering, chronic health conditions. They and their families are often more concerned with pain management, comfort care, and coordinating care as they transition from setting to setting. As people live longer with grave chronic illness are they getting quality care? Where in the delivery of care spectrum should palliative care come into play? Sponsored by the Alliance and the Robert Wood Johnson Foundation.


Joan Teno, Brown University, Speaker
Diane Meier, Mount Sinai School of Medicine, Speaker
Brad Stuart, Sutter VNA and Hospice, Speaker
Steve McConnell, Alzheimer's Association, Speaker

Transcript, Event Summary and/or Webcast and Podcast

Transcript: Quality of Care and Comfort at the End of Life: Changes Needed? (Adobe Acrobat PDF), 6/8/2007
Full Webcast/Podcast: QUALITY CARE AND COMFORT AT THE END OF LIFE: Changes Needed?

The transcript, full webcast and podcast for this briefing are provided by Kaiser Family Foundation.

Speaker Presentations

Teno - Embracing NH as the Place of Care and Site of Death for Older, Frail Americans (Adobe Acrobat PDF), 6/8/2007
Meier - Palliative Care in Hospitals (Adobe Acrobat PDF), 6/8/2007
Stuart - Hospice and Home Care (Adobe Acrobat PDF), 6/8/2007
McConnell - Barriers to Quality End of Life Care for People with Dementia (Adobe Acrobat PDF), 6/8/2007

(If you want to download one or more slides from these presentations, contact us at info@allhealth or click here for instructions.)

Source Materials

Approaching Death: Improving Care at the End of Life (executive summary) (Adobe Acrobat PDF), Institute of Medicine, 1/1/1997
Culturally Diverse Communities and End-of-Life Care (Adobe Acrobat PDF), American Psychological Association, 1/1/2001
Do rules hamper remedies for pain? (Adobe Acrobat PDF), Seattle Times, 5/21/2007
Fixing America's Hospitals (Adobe Acrobat PDF), Newsweek, 10/16/2006
End-of-Life Care: An Agenda for Policy Improvement (selected) (Adobe Acrobat PDF), Clinics in Geriatric Medicine, 2/1/2005
End-of-Life Care in Nursing Homes: Experiences and Policy Recommendations (executive summary) (Adobe Acrobat PDF), AARP Public Policy Institute, 11/1/2004
An Evaluation of the Advanced Illness Management (AIM) Program: Increasing Hospice Utilization (Adobe Acrobat PDF), Journal of Palliative Medicine, 11/6/2006
Family Perspectives on End-of-Life Care at the Last Place of Care (Adobe Acrobat PDF), Journal of the American Medical Association, 1/7/2004
The Foundation's End of Life Programs: Changing the American Way of Death (Adobe Acrobat PDF), Robert Wood Johnson Foundation Anthology, 1/1/2003
Get Palliative Care (Adobe Acrobat PDF), Center to Advance Palliative Care, 1/1/2006
Implementing a Continuum of Palliative Care (Adobe Acrobat PDF), Supportive Care Coalition, 4/1/2004
Improving Response to Life-Threatening Illness (Adobe Acrobat PDF), Health Progress, 1/1/2004
Living Long in Fragile Health: The New Demographics Shape End of Life Care (Adobe Acrobat PDF), Hastings Center Report, 11/1/2005
Medicare's hospice benefit for Alzheimer's beneficiaries: frequently asked questions (Adobe Acrobat PDF), Alzheimer's Association, 1/1/2006
The Medicare Hospice Payment System: A Preliminary Consideration of Potential Refinements (Adobe Acrobat PDF), RAND Health, 6/1/2006
NHPCO's Facts and Figures: 2005 Findings (Adobe Acrobat PDF), National Hospice and Palliative Care Organization, 11/1/2006
PACE is a Model for Excellence in End-of-Life Care (Adobe Acrobat PDF), Support Care Coalition, 7/1/2006
Palliative Care (Adobe Acrobat PDF), Center to Advance Palliative Care, 11/1/2005
Palliative Care Stories (Adobe Acrobat PDF), Center to Advance Palliative Care, 1/1/2005
Patterns of Functional Decline at the End of Life (Adobe Acrobat PDF), Journal of the American Medical Association, 5/14/2003
Redefing and Reforming Health Care for the Last Years of Life (Adobe Acrobat PDF), RAND Health, 1/1/2004
Quality End of Life Care for Individuals with Dementia in Assisted Living and Nursing Homes (Adobe Acrobat PDF), Alzheimer's Association, 8/1/2007
What is Comprehensive Cancer Care? (Adobe Acrobat PDF), National Coalition for Cancer Survivorship, 6/1/2007
Capps, Davis Introduce Legislation to Improve the Care of Cancer Patients (Adobe Acrobat PDF), Rep. Lois Capps, 5/24/2006
SELECTED SOURCES: Quality Care and Comfort at the End of Life (Adobe Acrobat PDF), Alliance for Health Reform, 6/6/2007
SPEAKER BIOGRAPHIES: Quality Care and Comfort at the End of Life (Adobe Acrobat PDF), Alliance for Health Reform, 6/6/2007


Steve McConnell of the Alzheimer's Association -- speaker at the June 8th briefing cosponsored by the Robert Wood Johnson Foundation.

Senator Susan Collins (R-ME), co-chairman of the Alliance for Health Reform -- keynote speaker at the June 8th briefing cosponsored by the Robert Wood Johnson Foundation.

Joan Teno, M.D., of Brown University -- speaker at the June 8th briefing cosponsored by the Robert Wood Johnson Foundation.

Brad Stuart, M.D., of Sutter VNA and Hospice -- speaker at the June 8th briefing cosponsored by the Robert Wood Johnson Foundation.

Diane Meier, M.D., of Mount Sinai School of Medicine -- speaker at the June 8th briefing cosponsored by the Robert Wood Johnson Foundation.


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